GLBTQQIA & Disabled's Journal|
[Most Recent Entries]
Below are the 19 most recent journal entries recorded in
GLBTQQIA & Disabled's LiveJournal:
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|Friday, May 11th, 2012|
volunteers needed for new research
I've been lurking on this comm for a while. Now I've been asked to post the recruitment ad below. The researcher is a personal friend of mine so I know that she's genuine. If you'd like to contact her, please use the contact details she gives below. She says this:
My name is Jessica Worner, and I am looking for volunteers to take part in a research project that I am doing as part of a Social Psychology MSc degree at the University of Surrey.
The research aims to look at the experiences of people who would describe themselves as disabled with a physical impairment or as having a physical disability, and who also identify as lesbian, gay, bisexual or otherwise do not identify as heterosexual.
To help me do this, I am looking for volunteers to take part in informal and confidential interviews that will last up to 90 minutes.
It is hoped that by doing this research, a better understanding may be gained of some of the experiences and issues faced by LGB people with physical disabilities.
To take part in interviews, you must be over 18 years of age and currently live in the UK.
If you are interested in taking part, or would like any more information about the research, please feel free to contact me via email at email@example.com or by calling 07783 267006.
|Monday, January 2nd, 2012|
Groundbreaking new documentary
Invitation to Attend the Première of the Documentary “Respect: The Joy of Aides”
Date: Saturday, January 7, 2012
Time: 11:00 AM-1:00 PM
Location: The Downtown Independent Theater, 251 S. Main Street, Los Angeles, CA 90012
What if one day, you woke up and found that you could no longer walk? What if you opened your mouth and couldn't form the words that you heard so clearly in your head? Who would you trust enough to speak for you? ( Read more...Collapse )
|Wednesday, July 6th, 2011|
Officially to the point of hating my body.
I saw my Allergist yesterday for a routine 1 year follow up. Long story short: I thought it was going to be a simple visit, but after multiple testings and scans, he came to the conclusion that I have a "Nodule of bacteria" in my left nostril. So. Excited. Except not.
So. Because of where the nodule is located (so close to my brain) and because I am immune suppressed, and because of all the other medications I am on, I have to be on antibiotics and Prednisone for the next two months. If I were not on other medications, I could be put on something different that would cut the treatment time drastically. ::sigh::
I realize I'm being dramatic, but the antibiotics are killing my stomach and I feel like I'm going to die. Also, my brain feels like mush, but I'm pretty sure thats just because I can't deal with this crap right now.
|Saturday, June 18th, 2011|
|Thursday, June 9th, 2011|
Awesome new documentary about people with disabilities and attendants
Hello I'm making a documentary exploring the relationship between people with disabilities and their aides. I think I have kind of a unique view on how aides should be hired and directed as employees. Since I spend so much time with my own aides I want us to become friends but also maintain the balance of a professional relationship. The most important thing is mutual respect which many people with disabilities and their aides don't have. This documentary will feature an awesome comedian and playwright who will talk about her own experiences, my own exploration of my relationships with my aides, and you will hear from the people who have worked for us. Please spread the word. http://aidedoc.weebly.com/
|Wednesday, May 25th, 2011|
6 hours left to vote for ME/CFS research and other neuroimmune illnesses
Just a reminder if you havent voted yet for the WPI...
We are in twelfth place and still dropping (the WPI) - currently entitled to $40000. We are risking losing the money at all. Please tell everyone you know to vote. It only takes two ticks and there is 6 hours left. Imagine what could be done with the money.
The WPI research into other illnesses like autism and fibromyalgia.
Instructions here: http://bit.ly/mCvKVM
Edit - ME/CFS stands for an illness known as either Myalgic Encephalomyelitis or Chronic Fatigue syndrome. It is sometimes also defined as CFIDS, (Chronic Fatigue and Immune Dysfunction Syndrome.) It is a chronic neurological illness effect approx $40 million worldwide. It it is extremely debilitating. Severe sufferers are blind, in severe pain, having seizures, sensitive to touch, sound, and light, unable to speak, paralysed, suffering severe mental and cognitive deficits, and symptoms of the flu. It is an underfunded illness with associated stigma because unless a sufferer is severely ill others cannot always see that the patient is ill because the illness can be invisible. Overdoing it mentally or physically will cause a relapse and the patient will spend days to years to recover. Unless the have a progressive illness from which they never recover. A full symptom list can be found here http://www.hfme.org/mesymptoms.htm
Triggers include trauma, infection , vaccination, pregnancy, and many more.
Causes include infections, heavy metal or pesticide poisonings, and malnutrition. Some studies link the illness to a retrovirus known as XRMV.
A good awareness video about ME/CFS can be found here http://www.youtube.com/user/redtoffee?feature=mhee#p/a/f/2/iDttA7kN-30
The WPI stands for the Whittemore Peterson Institute, a charity in Nevada. http://www.wpinstitute.org/
They are funding research into ME/CFS and other neuroimmune illnesses like fibromyalgia, autism, and gulf war syndrome. They are particularly interested in XMRV.
|Tuesday, May 10th, 2011|
ME/CFS awareness video - this week is international ME/CFS awareness week
Excellent video about ME.This week is ME awareness week. Please watch and spread the awareness. This video is by my friend Daisy and is amazing. It also has pics of me and many of my friends included. It is also getting loads of hits! This is an extremely debilitating, common neurological/autoimmune illness, which doesn't receive the attention or support it deserves. Please help us change that.
|Sunday, April 24th, 2011|
Call for submissions! A Broader Spectrum: Expanding Social Understanding of Disability
Call for submissions! "A Broader Spectrum: Expanding Social Understanding of Disability"
Call for submissions!
A BROADER SPECTRUM: EXPANDING SOCIAL UNDERSTANDING OF DISABILITY
Deadline: 1 November, 2011
What is a disability?
When faced with this question, many people will list an amalgamation of conditions or diagnoses, diseases, or identities. Since the acceptance of the Americans with Disabilities Act (ADA) into law, society as a whole has been mandated to accommodate needs due to disability status and make environments and opportunities accessible upon request. However, with this shift, social conceptions of what constitutes a disability have come to highlight a select few classifications from among the myriad individuals whose lives are vastly affected by what they consider a disability.
A BROADER SPECTRUM seeks to break down some of the notions that society maintains about what a disabled person looks like, as well as the existence of multiple identities within people with disabilities.
What community exists for people who are told they don't really have a disability, but in one or more ways cannot access mainstream communities? Where do we send people with Chronic Fatigue Syndrome, Fibromyalgia, non-debilitating brain injuries, or any number of invisible forces, to understand themselves and how to get along with their body? What has happened to the stories of individual people with disabilities as the age of the ADA has progressed? How do you nurture multiple identities when only one - if any - is socially recognized and/or accepted?
A BROADER SPECTRUM wishes to provide a stage for anyone who has been affected by this. For the people that are told nothing is wrong, but wake up every day knowing something about their body is not cooperating with them. For the people that have a diagnosis with no understanding of what it means for them and the people in their lives. For the people utilizing services under the ADA that need a space to discuss the problems still in existence despite this law, and for the people that wish they had service to utilize in the first place. For the people whose other identities have been forced to take a backseat to their disability, or vice versa. For the people that have been swept under so many rugs, whose stories are just as deserving of attention as everyone else's. The world is not immutable. Tell us about your future, your past, your present. Tell us who you are.
What to submit:
Poems, short stories, photographs, essays, graphic art, interviews, or any other expressive written work. Pieces should be based in NON-FICTION. Write about your experiences living with a disability yourself, or being partnered with someone living with a disability. Highlight moments where disability has intersected one (or more) area/s of life, including but not limited to: social interaction, community involvement, medical/self-care, diagnosis, relationships, family, friends, school, or employment. Pieces should be reflective and emotional: please detail how these experiences and disability affected you, if/how it changed your life, whether it had a lasting effort, if you experienced hostility, what your emotional process was like, etc.
It is not required that you disclose your/your partner's disability. However, as this anthology will seek to promote understanding and knowledge of disability by discussing situations that fall outside the "normal" idea of disability, greater amounts of honesty and disclosure may leave a more lasting impression on the reader.
Deadline is November 1st, 2011, though early submissions are greatly appreciated. Submissions should be sent with .doc or .rtf file extensions, or be black/white JPGs (if graphic art or photography). Previously unpublished work will be given priority - please indicate if your piece has been published prior to this. If you have an idea but need help transcribing it, translating it to English, or with any other means of recording it, please contact us to discuss possible accommodations.
Please include a cover letter with a brief bio, including contact information - address, phone number (please specify if voice/text/VP), preferred e-mail address, and pseudonym if you wish. Anonymity/changed names will be respected. All contributors retain rights to their pieces. Payment is in the process of being negotiated, but regardless, authors of accepted pieces will receive 1 copy of the book upon publication.
Send your submissions as e-mail attachments to firstname.lastname@example.org.
Please encourage reposting!
|Friday, March 11th, 2011|
hello all I'm Tansy. I'm a mostly lesbian taken 18 year old
I'm medically diagnosed with:
Aspergers Syndrome, ADD, OCD, Fine moter issues, depression, anxiety, hypersensativity (in sences) multiple learning disabilities...
(I've also been having panic atacks latly)
there is also some non medical stuff... and I think post tramatic stress left over from my childhood.... plus.... I deal with a lot.... like my parents being sick about 50% of the time... And going from upper to lower middle class due to parents illnesses.... ETC
is anyone here an artist?
|Sunday, December 19th, 2010|
[USA]: Bi-identified GLBT Vet and Activist celebrates repeal of DADT
Saturday, 18 December 2010Contact
: Cliff4vets (at) aol (dot) com
Dear Fellow Gay, Lesbian, Bisexual, Transgender & Heterosexual Veterans & Advocates:
On the morning of March 15, 1778, after having been court-martialed on charges of attempted sodomy, Lt. Gotthold Frederick Enslin
, became the first known soldier in our Country's history to be “drummed out”
of the Continental Army on grounds of homosexuality -- with orders of “Never to return!”Well, today, 232 years later, Gay, Lesbian, Bisexual & Transgender servicemembers and veterans have RETURNED, with the repeal of the US Military's "Don't Ask, Don't Tell" policy by an affirmative vote of the US Senate.
Yes, today, Lt. Gotthold Frederick Enslin finally rests in peace, as do ALL other GLB&T veterans who gave their lives in service to our Country.( History will record that the sky did not fall down upon us, and the Earth did not quit spinning.Collapse ) Current Mood: thankful
|Sunday, September 26th, 2010|
Hi! I'm Jake and I'm new here, so I thought I'd introduce myself! I'm a gay male, aged 25, and I have multiple health issues. I rarely use the term disabled, because I feel like if I get in to that "mindset" then I become less able to do things. I like to see things as "oh, I have these health issues, and I might not be able to do it the way 'normal' people can, but that isn't going to stop me from trying." Anyways, my health problems are as follows: Psoriasis and psoriatic arthritis (both auto-immune disorders, the P causes skin problems, and 10 to 15% of these people develop arthritis for some reason, thus the PsA), Non-Alcoholic Steato Hepatitis (bad liver), sleep apnea, "Chronic Health related Anemia" (basically they couldn't explain why I had anemia, so they blamed my bad health), and hypogonadism (which is a fancy/strange way of saying I have really low testosterone). And the low testosterone has caused me to have multiple fractures (low T means low estrogen which means my bones don't process calcium the proper way, so they break much easier). I think that sums up most of my health problems. If you have any questions, don't hesitate to ask!
|Monday, September 20th, 2010|
Акция "Лужков - гомик"
Московские власти под надуманными предлогами отказали в проведении
пикета организаторам анти- лужковской акции "Лужков-гомик", ссылаясь
на невозможность обеспечить безопасность участников акции из-за "узких
тротуаров и интенсивного пешеходного движения", а так же "заключения
Комитета по культурному наследию города Москвы о невозможности
проведения массовых мероприятий на Тверской площади (на которой
расположен памятник Ю. Долгорукому").
Считаем этот отказ надуманным, не мотивированным и противоречащим 31
статье Российской Конституции.
В связи с последними событиями, а именно: незаконным похищением и
удерживанием в неизвестном месте помимо его воли, лидера
правозащитного движения Gayrussia мы выйдем на акцию протеста
независимо от решения Московских властей.
Если власть не желает поступать по законам, которые разработала, то
граждане освобождаются от обязательств по отношению к ней, так как
власть является нарушителем основного закона страны.
Акция будет носить мирный характер.
Напомним, что гей активисты решили провести акцию в день рождения мэра
Москвы "Лужков-гомик". после того, как градоначальник оскорбил гей
сообщество, назвав их вышеупомянутым эпитетом. Суд встал на сторону Ю.
Лужкова, и признал термин "гомик" не оскорбительным.
В связи с последними событиями. к требованию о соблюдении прав
человека, мы призываем не только к отставке мэра. но немедленного
рассмотрения всех преступлений Лужкова: от экономических, до
преступлений против прав человека, и водворения Лужкова туда, где он и
должен быть- в тюрьме!
Отныне наш лозунг: Лужков должен сидеть в тюрьме!
Мы призываем всех политических и гражданских активистов, а так же
неравнодушных граждан выйти и поддержать нас 21 сентября, в 18 часов к
памятнику Ю. Долгорукому, и поддержать следующие требования:
Равные права для всех!
Лужков должен сидеть в тюрьме!
Требуем расследования и наказания виновных в похищении Николая
Алексей Давыдов http://lgbt-group.my1.ru
|Tuesday, August 24th, 2010|
Michigan disabililty nonprofit auction 9/11/10
You are all invited to the annual auction of Michigan's oldest and largest disability rights organization, the Ann Arbor Center for Independent Living. The CIL is NOT a residential facility or nursing home. A majority of people with disabilities comprise the staff and the board of this nonprofit.
The annual Gala Benefit Auction takes place Sat, Sept 11 at 6:30 pm in Ann Arbor, Michigan. Check out www.annarborcil.org/gala for more information or leave a comment for me. Everyone is welcome!
|Tuesday, August 3rd, 2010|
LOOKING FOR A NEW CO-MODERATOR!
and I are looking for someone to co-mod this community with us. We need some assistance monitoring comment threads, starting discussions, and generally keeping this community a happy place...and making it a busier, more enticing/unique one! Anyone who's interested should fill out the form under the cut and email it to me at
caitlinh 4590 at gmail dot com
and I will go over the submissions together and determine who would be the best possible asset to the community's moderating team. If the decision is an especially difficult one, we may select two new mods. Deadline is August 31st.( The ApplicationCollapse )
Good luck to all the applicants, and thanks, all, for your time!
<3 Caitlin Current Mood: excited
|Saturday, July 10th, 2010|
Please vote for ME research on a facebook application
The following information has been copied from various sources. If the charity P.A.N.D.O.R.A receives enough votes they will get a grant which they want to use for neuroendocrineimmune research (into ME and similar illnesses.) Voting is free and takes a few seconds. PANDORA is the only ME charity that is in with any chance of wining money. So please vote!
P.A.N.D.O.R.A.'s number one focus is the establishment of the NeuroEndocrineImmune (NEI) Center, a grass-roots patient-driven and physician-approved community project, to be located in the state of New Jersey, and with satellites offices. Our mission embraces neuroendocrineimmune disorders (NEIDs) such as chronic fatigue syndrome-ME, fibromyalgia, chronic Lyme disease, multiple chemical sensitivity (environmental illnesses), and Gulf War Syndrome/Illnesses. Our goals are: to continue to provide educational programs for patients, caregivers, physicians, and the public; advocate and spearhead grass-roots initiatives to raise awareness for NEIDs and for the substandard quality of life individuals with NEIDs face daily ; achieve successful and supportive partnerships with local, state & federal government health agencies, and other similar organizations; support and advocate for increased scientific research; encourage and assist patients & their families in leading successful live
( more...Collapse )
|Wednesday, July 7th, 2010|
It's a new month, New discussion topic
Why do you get away with things?
[Edited content removed by author]
I often look at what I anticipate getting away with. There are some big ones. I won't ever have a family due to the nature of my disability and the medication I take to help mitigate the majority of symptoms. While my parents are still hopeful, I haven't had the heart to tell them and maybe when I'm 50 they'll finally give in. My friends don't expect to be invited to a 'wedding'. And my friends, though ever hopeful, know I won't be bringing a plus one to their weddings.
Don't get me wrong, there's emotional pain involved with each realization that these are things in life I may at one time really wanted, but now this is my reality and I at least have to have a grip on life no matter what seems to come my way.
But then there's other things like, my head teachers at work know that I'm flipping through three books at once and they come over and take away two of them. Clearly that day I'm not focusing and I'm definately not helping them when I'm not able to get out the information they need. Even when I sputter and claim that the books are reference, unless it's a dictionary I probably actually don't need that book right then and there.
Even in every day life, just finding the thing that just made that moment easier is helping you get away with some little less chaotic burden.
But what are you aware of that you "get away" with due to your disability? I'm not just talking about when you were younger, perhaps even now. Not just because you can't handle it. And when you look back, does it bother you or did it save you? What do you get away with for being gay? Current Mood: contemplative
|Monday, July 5th, 2010|
|Thursday, July 1st, 2010|
Disabled parents are just as capable!
I know that this isn't GLBTQ-related, but it is disability- and discrimination-related, and I thought maybe some of you would help by donating money or spreading the word. Thanks so much!
* * *
On May 21, 2010, a blind couple in Missouri gave birth to their first child, Mikaela.
A few hours after Mikaela was born, the mother experienced some difficulty breastfeeding,
a common problem for first-time mothers. She asked her nurse for advice, but instead
of offering guidance, the nurse called Child Protective Services. That evening, newborn
Mikaela was taken into foster care. Why? Not because the parents used drugs, showed
signs of abuse or were found to be living in substandard conditions. The only reason
CPS cites for their intervention is the mere fact that the parents are blind and,
therefore, are not fit parents. This in spite of hundreds of blind parents, including
single parents and blind couples, who have successfully raised children to adulthood.
Leaders in the National Federation of the Blind of Missouri also interviewed the
parents extensively and determined that they are indeed skilled in the adaptive techniques
needed to parent without sight.
Amazingly, no federal laws exist at this time to protect disabled parents from this
kind of blatant discrimination. So the burden of proof now rests on the parents to
demonstrate that they are capable of taking care of their daughter. With the help
of the NFB of Missouri, they have hired an attorney at $250 per hour to represent
them in court, and are also paying to get official evaluations showing that they
are fit to raise a child. We are optimistic that with a sympathetic judge, baby Mikaela
will be able to come home. But we need money to continue fighting this battle, not
only for Mikaela's family, but also so that people like me will be able to have kids
one day without fearing that this tragedy could happen to us as well.
If you would like to make a donation to help defray the tremendous legal expenses,
and are going to convention, you can stop by the NFB of Missouri table in the exhibit
hall. If you aren't going to convention but would still like to contribute, please
send a check to:
1613 Blue Ridge
Columbia, MO 65202-1759
Please make checks payable to "National Federation of the Blind of Missouri" and
write "baby Mikaela" in the subject line.